It seems almost as if Liam has moved from the realms of misrepresentation to downright fiction. The kind of descriptions coming out from this article are appalling...and therefore probably untrue.
Clinical trials simply aren't run like that - especially ones with kids - especially ones using existing therapies in an attempt simply to expand the access.
I should know - I've worked on several clinical studies with kids, some of them designed to expand access (none with HIV though).
They describe dosing schedules of midnight, 3am, 5am...these simply wouldn't exist. They're entirely impractical for post-study use. They describe changes in medications, as if ideas were being thrown around at will. You simply cannot run a study like that (literally, you will get meaningless information and the IRB won't let you!) The regulatory issues are addressed by a letter from the NY State health department here.
Liam describes a child "bleeding from every orifice" after being given thalidomide, which has actually been used to TREAT gastrointestinal bleeding and doesn't have bleeding as a side effect (except abnormal menstrual bleeding). If you're going to name-drop a well known "disaster" drug, at least have the sense to check whether it can cause the side effects you're accusing it of causing...
If a child "expressed that [they] don't want to take the drugs" they don't. You are not allowed to force someone, anyone, even someone below the age of "consent" to participate in a clinical trial. Kids get special protection under international agreements for clinical research.
I've written to the ICC, maybe I can get more information about this thing.